Boy born with no arms or legs hits roadblock in stroller
Tue, 09 Jul 2013 03:16:23 GMT —
Like most kids his age, you'll find Edgar Pacheco, Jr. online checking his Facebook page.
"I'm very good with computers," he said.
But this soon-to-be 12-year-old is forced to navigate a mouse with his chin and types on a keyboard with a special straw in his mouth.
"I am a normal kid because I can do almost anything every normal kid can except when it comes to moving me around," he said.
Edgar was born with no arms or legs.
He's learned to adapt without the use of his limbs, but recently maneuverability has become especially difficult for him and his parents.
"I have a very old stroller right now," he explained.
Edgar exceeds the weight restrictions by more than 10 pounds on his stroller causing the wheels to buckle and wear.
The makeshift belts to secure him in it often breaks.
His mother Diana said she's turned to his insurance for help but to no avail.
"It's been over a year-and-a-half that we claimed that under his insurance and we've never had any response," she said.
Edgar wants his independence.
"I would really enjoy being outside," he said.
An electric wheelchair helped him in the past, but it's broken and his home doesn't have a ramp.
Edgar's totally dependent on his family to get around.
"I have a very supportive family," he said. "My sisters help me a lot and also my mom and dad."
Edgar doesn't want to be a burden.
His mother said they do the best they can.
"We just prefer to carry him like this with our arms and maybe if we're going into a restaurant we just carry him and put him into a chair," she said.
Edgar said he'll continue to be in good spirits.
"I'm always in a good mood."
After-all, there's plenty he said to be thankful for.
Anyone who wants to help Edgar with a wheelchair or ramp can send Action 4 TMs Ryan Wolf an email message to firstname.lastname@example.org.